Who is sleepapnea.org - American Sleep Apnea Association

Mission Statement

The mission of the American Sleep Apnea Association is to improve the lives of sleep apnea patients. We accomplish this mission through education, services, peer-support, research, and advocacy.

Vision Statement

At the ASAA, we envision a world in which no one suffers from sleep apnea because it is easily diagnosed and cured. In the meantime, we work towards a world in which sleep apnea is promptly and easily diagnosed; treatments are affordable, convenient, and highly effective; and patient voices are an essential element of the entire sleep apnea supply chain and decision-making infrastructure.

History

The American Sleep Apnea Association (“ASAA”) was founded in 1990 by a group of physicians and medical device industry representatives. One of their first goals was to administer and grow a new model of peer support groups, the Alert, Well, and Keeping Energetic (“A.W.A.K.E.”) forums. In 2014, the ASAA went through a re-organization to become a patient-driven organization committed to patient advocacy, with strong patient representation among the board of directors and staff. Here are some of the highlights of our activities in recent years:

  • 2010: The ASAA started our CPAP Assistance Program, which provides low-cost CPAP machines and supplies to low-income, uninsured, or underinsured sleep apnea patients. The program began with a donation of over 9,000 CPAP’s by ResMed. Now, the program provides 160-200 CPAP’s per month to sleep apnea patients in need.
  • 2015: The new board launched the Sleeptember initiative during the month of September to raise awareness about the importance of recognizing and treating sleep apnea. Each year, Sleeptember promotes a new host of activities promoting sleep apnea awareness and community engagement.
  • 2016: The ASAA launched our Overlap study with the COPD Foundation, which explores if patient data monitoring and an online classroom will help people living with Overlap Syndrome use their PAP devices more effectively.
  • 2016: The ASAA launched the SleepHealth App, allowing patients to track their own sleep health data and giving them practical advice about healthy sleep habits. The app is available on the Apple App Store, and has over 12,600 users.
  • 2018: The ASAA hosted the FDA for a Patient Focused Medical Product Development (PFMPD) meeting, and presented findings from our 5,630 patient-survey. The results of the survey and meeting were combined into an 88-page A.W.A.K.E. Report.
  • 2018: The ASAA started an online Facebook A.W.A.K.E. group, supplementing our in-person A.W.A.K.E. meetings and increasing access for those who don’t have a group in their area.

Guiding Principles

The ASAA is a patient-centered, ethical, evidence-based, accountable, and inclusive organization.

  1. We are an organization of, by, and for patients. The needs and well-being of patients are always our first priority.
  2. We strive to meet the highest standards of integrity, honesty, and transparency in all our actions.
  3. We are committed to providing accurate, scientific, evidence-based information.
  4. We practice good stewardship of and accountability for the resources entrusted to us.
  5. We welcome everyone affected by sleep apnea, regardless of color, national origin, citizenship status, age, physical or mental disability, race, religion, creed, gender, sex, sexual orientation, gender identity and/or expression, genetic information, marital status, status with regard to public assistance, veteran status, or any other characteristic protected by federal, state or local law. We commit to providing a safe space for people of all backgrounds to participate fully in all our activities.