Participate in Sleep Health Research

Our organization is dedicated to promoting research and helping patients have a voice in the future direction of that research to find new treatments, and ultimately cures for sleep apnea.

Below are descriptions of the ASAA’s research projects, and a list of services that will help you find clinical trials in which you may wish to participate.

 

ASAA Research

 

AWAKE Sleep Apnea: Raising Voices for Progress in Treatment and Care

In 2018, the ASAA conducted a survey of 5,630 sleep apnea patients, asking 32 detailed questions about their experiences with sleep apnea. Patients were drawn from the ASAA’s online network, and through patient-generated-data organization Evidation. We shared the results of this survey at a patient-focused conference with the U.S. Food and Drug Administration (FDA) in June 2018. The conference included two panels of 5 patients each, and audience discussion of the most prominent topics. You can read a detailed analysis of the survey and conference findings in our A.W.A.K.E. Sleep Apnea Report.

O₂VERLAP Study

Did you know that about 60% of people with both COPD and obstructive sleep apnea (known as “Overlap Syndrome”) are not using their continuous positive airway pressure (CPAP) mask as prescribed? This is dangerous because it creates an increased risk for flare-ups and hospitalizations. The COPD Foundation and ASAA want to know if an interactive online classroom will help people living with Overlap Syndrome use their sleep masks properly. Registration for this study is open through May 31, 2019 – learn more about study requirements and how to sign up! The ASAA will share the results of this research through our online platforms as soon as is it available.

SleepHealth Mobile App Study

The SleepHealth mobile app is both a sleep research study and an online sleep wellness tool, powered by Apple’s ResearchKit and IBM Watson Health Cloud. SleepHealth is a personalized tool that can help you gain greater insight into your sleep habits and sleep issues, learn how sleep is associated with other conditions you may have, and take charge of your sleep health. The app provides daily check-ins to track daytime alertness, and it can pair with your apple watch to track of your daily physical activity and sleep data. The app also provides checklists and tips for getting a good night’s sleep. Have an iPhone? Join today!

Other Ways to Look for Research

Can peer-support help people become more comfortable and confident using CPAP therapy? Can it help them use CPAP therapy as directed, and achieve better health outcomes? In 2014, the ASAA collaborated with Dr. Sairam Parthasarathy, MD of the University of Arizona to initiate a PCORI-funded study to address these questions. The study sought to determine whether peer-driven interventions could increase patient satisfaction with care delivery and coordination, increase adherence to CPAP treatment and self-efficacy of patients, and improve patient outcomes. This research study is now concluded, and the ASAA will share the results of this research through our online platforms as soon as is it available.

Evidation Web-Based Sleep Study

Can an effective sleep study be conducted entirely online? Can online recruitment help studies speed up recruitment and increase patient participation? In 2017, the ASAA collaborated with Evidation Health, a tech company specializing in online tracking of patient generated data, to launch a research study to answer these questions. The aim of this study was to investigate a method for speeding up the recruitment process and maximizing participant engagement in sleep research using a novel approach, the Achievement Studies platform created by Evidation Health, Inc. Specifically, the study examined the relationship between participant sleep and daytime function. Ongoing data collection was concluded on March 31, 2018, and the researchers are now engaging in data analysis. The ASAA will share the results of this research through our online platforms as soon as is it available.

 

Finding Clinical Trials

 

Participating in clinical trials is a way to use your expertise as a sleep apnea patient to advance the scientific understanding of sleep apnea and related conditions, and possibly help advance new treatments. The following sites can help you find clinical trials in which you may want to participate.

Search Clinical Trials

Search Clinical Trialsis a free service designed to help people find clinical trials that are relevant to their needs. CISCRP staff will work with you to understand your needs and our staff will help you find local clinical trials in your community, or as far as you would be comfortable traveling.

Center Watch

CenterWatch.comallows you to search for clinical trials and Sign up for a FREE service where they will send you automatic email notifications as soon as a clinical trial is posted in the medical category you’re interested in.

ClinicalTrials.gov

ClinicalTrials.govis a Web-based resource that provides patients, their family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions.

 

If you would like to include a study in our listing, please email . Listings are free; however, studies must have Institutional Review Board (IRB) approval to be listed.