Our staff spends a lot of time in forums and social media talking about the challenges of using CPAP to treat sleep apnea. We see first hand the struggles people have with the equipment, settings for pressure or humidity, the technical aspects of CPAP therapy, even social and relationship problems that result from using (or not using) CPAP.
We know it can be hard. Many on our staff use CPAP, and can relate! We also know that not treating sleep apnea is not an option if we are to be fully functional human beings emotionally, physically, and mentally.
The American Sleep Apnea Association (ASAA), along with its expanding family of sites and programs, invites you to share your experiences with us. Tell us your stories! We exist to engage with, educate, and motivate patients who have sleep health concerns, and your complaints, horror stories, and laments about using CPAP won’t fall on deaf ears (nor will your praises, success stories, and encouragement).
Tell us about your journey:
What initially inspired you to seek help for your sleep apnea? How long did it take for you to do something about it?
If you are a loved one or bed partner, what did it take for you to get your loved one to seek help? Were there snoring problems that meant your sleep also suffered? How would you advise others who are facing the challenges of living with someone who uses CPAP?
Has CPAP saved your life? Let us know how and what has worked for you.
Does your child use CPAP? People need to know that this is a reality; we would love for you to share your story.
Describe your sleep study experience. How many tests did you have? What happened that encouraged you to try CPAP therapy? What part of the test or tests was unpleasant? What would you say to others in need of sleep apnea testing?
What’s your favorite mask, and why? Or, What’s your least favorite mask, and why?
We encourage you to send us your answers to these questions by way of this blog, our Facebook groups, our Twitter feed, our Sleeptember® forum, or even in email or surface mail. Listed below are a wide variety of ways you can connect and communicate with our team at the American Sleep Apnea Association.
If you have other questions, comments, feedback, or suggestions, we would love to hear from you as well! We’ll be glad to hear from you!
Best in health,
—Your team at the American Sleep Apnea Association
Spotify #GoodMorningMusic playlist: http://bit.ly/Sleeptember_GoodMorningMusic
Spotify #AfternoonTunes playlist: http://bit.ly/Sleeptember_AfternoonTunes
Spotify #SoundAsleep: http://bit.ly/Sleeptember_SoundAsleep
Sleeptember.org: firstname.lastname@example.org (We highly recommend you join our free, private forum to ask our patients and volunteers your sleep-specific questions and to seek out advice for concerns with CPAP, insomnia, insurance, and other related topics)
SleepHealth Mobile App Study: Telephone: 877-355-0119 (Leave a message if you have questions about the study or your participation.)
A.W.A.K.E. Patient Support Network: email@example.com
CPAP Assistance Program: For all questions about our CPAP Assistance Program, and to check application or program fee status.
American Sleep Apnea Association
2000 Pennsylvania Ave NW #7000
Washington, DC 20006
The ASAA is unable to provide medical or legal assistance. If you have a question related to sleep health or sleep disorders of all kinds, please visit our community forum at talk.sleepapnea.org to find advice and support from other patients or our volunteers.