Why should we have a patient coordinator?
The ASAA A.W.A.K.E. Network is committed to the philosophy of patient-centered self-help groups. It is the people with sleep apnea themselves, often with the guidance of some sleep professionals, who should make the decisions about the group, its structure, and functions.
For A.W.A.K.E. groups started by a sleep professional, one or more coordinators who will take leadership responsibilities should be identified. People affected by sleep apnea, often patients with appropriate skills who are known by the sleep professional are the appropriate choice for this role. The structure of self-help groups should be that they are run by and for the people affected by sleep apnea, with the professional in an ancillary role.
How many sponsors should we have?
If you are a person affected by sleep apnea and a potential coordinator, your group is not required to be sponsored by sleep professionals or organizations, but we do strongly recommend that each group find at least one sponsor, and preferably more than one, to assist you in your efforts.
Contact the sleep disorders centers, doctors and dentists working with sleep apnea, home health care companies, and any other appropriate sleep professionals in your area. Explain that you are considering starting an A.W.A.K.E. group, what you are looking for in a sponsor, and invite them to participate as sponsors if you think they can help your group thrive. Sponsors can be very helpful in arranging speakers, distributing meeting announcements, and providing refreshments. Your sponsor/s will also serve as a resource and advisor for your group.
What is the difference between the coordinator and the sponsor?
Health professionals are frequently involved with self-help groups; however, their extent of involvement can vary greatly. Professionals have specialized knowledge that is valuable to the group, but the role of sponsor is different than the role of coordinator. Professionals starting a support group need to encourage leadership from within the group.
If a company sponsors an ASAA A.W.A.K.E. Network group, the relationship must be clearly understood so that the group knows what aspects the company is supporting; for example, mailings or refreshments. In relationships with different institutions and organizations, please remember the issue of patient confidentiality.